I remained positive, we researched lots of cases of mistaken dates, inconclusive scans, and compared them to our situation; scrutinising everything to try and believe it was all one big misunderstanding. It was horrible. We just couldn't use the words. So I no longer trusted my instincts. I was saving my child from pain and suffering. I give obsessively to charity, especially those linked to sick children. This publication is licensed under the terms of the Open Government Licence v3.0 except where otherwise stated. You have rejected additional cookies. We didn't name him. So that just left the talipes. However, a few hours later there was another shift change. I know its hard- but i really wouldnt worry about it too much as the worry will stress you and your body out. You may need to have a full bladder when you come for the appointment. Some people had underestimated how serious any abnormality found at this stage could be for the baby. So even if anomolies are found, they don't always mean a problem.. x. I had issues at the 20 weeks scan with both of mine. They would then re-test me in two days time. I had a horrible feeling of relief. Please ask your hospital about this before your appointment. I then found that soft markers means 'vague unproven suggestion of a link', and that echogenic locii are small concentrations of calcium which are incredibly common and harmless. Mumsnet carries some affiliate marketing links, so if you buy something through our posts, we may get a small share of the sale (more details here). I should stop being dramatic and pessimistic. Only this time, no cry came. So we went home really and I sort of had to think about it all night. And there [sighs] was a very dark patch over one, where the eye socket was, and they didn't know it, in the Edward's babies sometimes the eyes don't develop properly, or it might have been bleeding, they weren't very sure. I was told they needed to do a blood test to get a bench mark of my hormone levels. As I was called for my scan I was nervous and emotional. . I think there might be a problem'. We were bound to each other because of the blood that was on both our hands. This might be uncomfortable. Baby loss stories Wed like to set additional cookies to understand how you use GOV.UK, remember your settings and improve government services. The doctor told me he was 98% sure this was a failing twin pregnancy. The screen may be directly facing them or at an angle. So I sort of went home quite, fairly kind of happy and I, at, at this point I hadn't any idea things could go wrong anyway. It took 20 minutes to push him out. We felt as if we were in limbo. It was interesting - well it was fantastic to see this fetus and to see this child that was yours that was horribly ill - but you didn't really get much opportunity to see that because the consultant was more about measurements and all sorts of blood flow and various other screens coming up. These were said to be soft markers fo a range of trisomies, 2 of which were incompatible with life. Many described how sonographers and doctors were very restrained and didn't speak at all until they had analysed all the baby's details. By this time, we were tired. I had no issues at my 20wk scan with DD - and neither did any of my antenatal group (9 mums). He looked excited. My wife turned the screen away from her. She asked me how far gone I thought we were, and if I could have been mistaken. It will take only 2 minutes to fill in. There was cause for concern. Has anyone been told the wrong sex at 20 week scan? Within it are a number of recommendations for the communication of findings from ultrasounds. Maybe. And you know, we were laughing and joking. The blood test confirmed it was twins. I was booked back in to discuss management options, if nothing had happened. Sometimes it is difficult to get good views of a baby. The scan was inconclusive, but the size of my little bump was measuring a lot smaller than it should have for 10 weeks. Specialist scans had a powerful effect on some parents because they could see the baby more clearly and in some cases people recognised which parts of the baby's body were not working properly. Possibly with hindsight we could have been more worried about it, but was probably a good thing we weren't, because we weren't worried about anything basically. blood tests, CVS) were clear - and as one woman put it, 'after the triple test* (Down's syndrome screening) you stop thinking anything can go wrong'. I didn't really know what that was. There's nothing wrong, you know, we've had all the tests, everything's fine,' and being very upbeat about it all. Next most likely is that baby doesn't co-operate and they can't see some parts of anatomy and call you back 2 weeks later just because they couldn't see (i had this but because twin pregnancy I was due to be scanned 2 weeks later anyway). The weeks since that day have been very weird. And my husband, we never got to sit next to each other in the consulting room, my husband was across the room from me, and I was sat next to the consultant, and we were laughing and joking with him about, you know, the home delivery, and everything was going to be, 'Are you still on for the home delivery?' We had the baby cremated. Most scans are carried out by specially trained staff called sonographers. Can you remember that minute. But it was very evident. To comment on this thread you need to create a Mumsnet account. Last updated July 2017. Sometimes specialist scans such as 3D scans, or MRI scans, are used to examine the baby in greater detail. or sort of light chat that we'd, we'd experienced before with previous scans. I went home feeling crushed; Sam and I both felt helpless. The scan will look in detail at your babys bones, heart, brain, spinal cord, face, kidneys and abdomen. And shortly after that, that scan we'd finished and the consultant leant back and said, 'I'm afraid we have some problems here'. The doctor explained the options I had to manage my miscarriage. Christmas came and went in a blur of emotion, it felt so wrong to be celebrating when we were in such turmoil. But they didn't. The doctor gave her consent, and I took the four little tablets. The baby kicked, blissfully unaware of what I had done. Emma was 20 weeks' pregnant when a routine scan revealed that the baby she was expecting had Down's syndrome and heart problems. Thanks girls, it's amazing how protected our babies are in there isn't it?! We left for home feeling completely numb. The thing about that which I felt was difficult is that we could tell when being scanned that there was something very seriously wrong. So he went out for a walk. As I left the room to compose myself. And then I can't remember an awful lot more about that scan apart from that feeling of searching of how to react in an unknown situation - your brain's kind of trying to work out what to say, what to do, but I had no idea what to say or what to do and I think my first thought was, does that mean our first daughter's okay? It seemed a very arbitrary system, and so you quite often sat outside in the waiting room for a couple of hours before you actually got to see the consultant, which was, seemed you know, I kind of remember thinking before we went in to see him on the particular day when we found out there was a problem, 'Why are we sitting here? The doctor wanted to do another blood test to confirm a significant drop in my hormone levels. Sometimes doctors will wait to give the baby more time to develop and carry out repeat scans - this had confused several parents we talked to who had gone for repeat scans not knowing that the baby might have a problem. No one else ever met the object of my grief. the amniocentesis) and the pregnancy had already ended, or because the scan was not routinely offered in their region 5 or more years ago. I can feel my child kick, it responds when he shouts at football - I mean literally, this baby used to dance around whenever he'd like scream at a goal - and there cannot be anything wrong with this child because it's part of us already. It's quite common, perhaps 1 in 10 they find these, and within a few weeks they disappear. I tried to keep positive. Laura miscarried her twin babies in February. Although the anomaly scan is often called a 20-week scan, you may have it any time between 18 and 22 weeks, although it's usually done between 18 and 20 weeks. And they, sort of two of them were looking at the scan machine and then they sort of switched everything off and said, 'Oh, I think we have, might have a problem'. I felt sad, but not the complete devastation of the last scan as they had seen a change of some sort. We spent the next few weeks in a happy bubble. All women are offered a dating scan, and an 18- 20 week fetal anomaly ultrasound scan, in line with NICE and UK National Screening Committee recommendations. That was the first time I had heard him cry. It would be a personal tragedy for my partner and me, but that is all. And it's, I can't remember exactly what it was now, it's about where the brain is supposed to form. I wrote a few things down last night when we were trying to go over things, just to remind myself. A company limited by guarantee registered in England and Wales company number 3266897. We had the 20 week scan yesterday and got some devastating news. The contractions started very quickly and within an hour my waters had broken. So it was quite common, this is what happens. Somehow, I walked from the sofa up to the bathroom and told my partner. I've been incredibly lucky to have such amazing support from Sam, my mum, and close friends and family. . You could see her face, and the major aspect that was, that was the indication of what was wrong was the thickening at the back of the neck in this instance, which, when you're looking at a fetus is, you know, sort of half a centimetre thicker or not is completely immaterial to me, and would look like a completely normal neck, but from the point of view of the consultant was severely abnormal. Several women had taken young children with them to the 20-week scan because they expected to see 'nice pictures of the baby'. She endured many agonising rounds of scans and tests, and unfortunately met with some unhelpful attitudes from some healthcare professionals. They said the brain was okay -, We were in there for a matter of minutes, literally -, In and out. I pray it's just her heart but I can't see anything else is wrong as I have been scanned by a consultant since I was 14 weeks and every time he has said everything looks okay and she is growing consistently. Eventually, the doctor finished the scan and said that some of the baby's measurements were very small. It is also sometimes referred to as the mid-pregnancy scan. I was then told yet again bad news. I guess the morphine made it easier. I had hope that the little bumps inside me were fighting just as much as I was to stay with me. He wanted to talk about it, but I didn't. And attribute some blame to them. I know it is still early days. The 18-20 week antenatal scan and further tests, Ending the pregnancy for family & personal reasons, Deciding whether to see, hold and name the baby, Photographs and other mementoes of the baby, Saying goodbye to the baby - services & funerals, Coping with bereavement - women's experiences, Coping with bereavement - men's experiences, Men's ideas about their role in ending a pregnancy. But it is a soft marker for Edwards' syndrome. He bluntly told me, he wasn't interested in whatever was seen before, he was only going to go by what he saw that day. Our week-by-week PREGNANCY emails are a must for parents-to-be. That was an extremely difficult day. Sam squeezed my hand and told me it was ok. Some parents wondered if it was possible to have the same scan done at 16 weeks rather than 20 weeks. This image shows a baby's face and hands at 20 weeks, and gives you an idea of what you'll be able to see at this scan. And, sometimes, I wish I had invited my whole family into the hospital room to see him. It seemed inconceivable that we would not be having a baby in May. x. He sounded like a wild animal in pain, deep pain. I had to stop myself from yanking out the needle. As soon as we arrived, we were shown to this little room. At the time the same thing had, exactly the same thing had happened to my friend a month before, and her scan was absolutely fine. You get extra care and monitoring as appropriate and baby is proactively treated. And I felt like a murderer. After preparing myself to face having to take the medication. And the first few things they said it didn't sound as thing, as though things were terribly wrong. Do you have any thoughts about that? It felt as if we'd gone underground, that we were part of the criminal fraternity. It's, I mean you can't tell from these scans what you're looking at really, but I remember thinking, 'it just doesn't look quite right' or something, but I didn't give it much thought. Where we have identified any third party copyright information you will need to obtain permission from the copyright holders concerned. By my own hand, I had to end the pregnancy. hi ladies. I took my vitamins, stuck to the healthy diet and put on a brave face. We needed closure, to allow us to grieve properly. unfortunately the 20 week anomaly scan can pick up serious issues, hearing heart beats at midwife appointment doesn't let us know what's going on inside the body in detail. I didn't sleep that night I don't think. I endured 12 hours of medication and in the early hours February 7, 56 days after my first scan (at nearly 18 weeks), I miscarried our babies. And they actually asked my husband to come in before they spoke to me. Just that really! Read full disclaimer. The baby was very, very small. And with each one we had to have the same conversations. And at that, I let out a scream I think. I've still had no cramps or bleeding so fingers crossed everything is ok I just couldn't believe I fell down the stairs, I can't remember the last time I ever did that! The only thing you're thinking now is the birth, and what if something goes wrong in the birth? I have horrible thoughts. I want to enjoy my son again, without any reservations. The scan can provide information that may mean you have to make further, important decisions. And, faced with feeling sorry for myself or feeling sorry for my child, I know which I'd choose. I couldn't really believe what they were saying. Dont worry we wont send you spam or share your email address with anyone. But that was too easy. He started to scan me with a cold expression, then told me, "it didn't look good" and that "my womb looked raggedy". The 18 -20 week fetal anomaly scan is a watershed in most pregnancies because for the majority of women it will be the last time they are scanned before giving birth. The week that followed was an agonising wait. Those two weeks were agonising for us both. I know I could have delivered him in a quarter of the time, but I couldn't bear the thought of him leaving me. It would have been nice to see someone straight away because I was in such shock. We were denying him his life. No, you couldn't see there was anything wrong. I believed at this point I had miscarried, they wanted me to come back I'm for a follow up scan. Specialist scans I was becoming numb to the whole process. I didn't want to be convincing him to agree with me. I've realised that being a nice person is a luxury some can't afford. Which is what I'd seen. See you in -. We, I was with my mum, and they scanned and found choroid plexus cysts on the brain, which is just a mark, it's a marker on the brain, it's a, what they call a 'soft marker'. If you choose not to have the scan you can still have all other parts of your routine antenatal care. Limitations of the 18-20 week scan And they took me to another room and they explained that the baby had what they thought was ventriculomegaly or something. So once again we were right back down, really no, really not knowing what to expect. Slightly marked from our peers. The same unique expression he had when he saw our two year old born. I had an appointment with my consultant 2 days later, and again he said, you know, 'Very common - shouldn't worry about it too much, you know, if, the problem is if they find anything else wrong'. For women who have been given distressing news about their baby during the scan, there should be a health professional available to provide immediate support. I wasn't ready to make a decision straight away, and I was told I could call them in the morning. Thinking back, I don't know how we left without him. Spina bifida can usually be seen clearly on a scan and of those babies who have this condition, around 9 out of 10 (90%) will be detected. This scan takes place between 18 weeks and 20 weeks 6 days of pregnancy and is commonly called the 20-week scan. He suggested he perform an amniocentesis immediately, to rule out any chromosomal problems. I had to be rescanned latter. There were also two spots on his heart, which were "soft markers" for Down's syndrome. Fine, go on my own. Some hospitals do offer earlier anomaly scans of the baby, but they will not show as much detail as scans performed between 18 and 20weeks. Or, at the very least, heart problems. The clinic advised a follow up scan the week after, to check on progress and to see what to do next. And I couldn't escape the feeling that I was being selfish. We thought it would all be over very quickly but, in fact, it was another 11 hours before the baby was delivered. Has anyone been told the sex incorrectly at their 20 week scan? The same rush of excitement. This short video explains screening for 11 physical conditions in pregnancy. Actually you could tell from the brain development as he scanned up through the chambers of the brain, that one quarter of the brain, one chamber was not evident. Can you describe the difference between the scan at this later stage in a pregnancy? I was told this was common as my body and hormones still thought I was pregnant. If one of the conditions is found or suspected, the sonographer may ask for a second opinion from another member of staff. But worse was to come. As I lay down, and the sonographer started, I could see there was something wrong. And she said that, you know, as the, if the baby did develop further there would probably be other problems with internal organs that weren't really that visible at that stage. She just said, 'It's a bit short, it needs to be checked' again basically. Specialist scans are performed in specialist fetal units and if clinicians feel that there might be problems scanning will be done up to 32 weeks. From losing my dad to his battle with cancer, to then having to face another battle with cancer and my mum; thankfully she pulled though. In some cases concerns in utero fix themselves sometimes needs treatment. [Husband] couldn't make it. It went from bad, to worse, to worse, to dire, then to better. And I remember, the first thing I remember when something might be wrong, was I saw, I finally, we finally saw an image of the skull on the screen, and there appeared to be a sort of black hole shape in the middle. Last reviewed July 2017. And it all seemed so near at hand, you know, 31, 30 weeks, you feel like you're nearly, you're on the home stretch. But it's bloody hard being miserable the whole time. We need to have your opinion'. And, so they sent me home at that stage because they said the specialist wasn't available till the following day, which was awful. For instance a couple who knew their baby was 'on the small size' were told he was fine at the 18-20 week scan, but discovered at 32 weeks that he had microcephaly. It is essential that all practitioners performing fetal anomaly ultrasound screening should be trained to communicate abnormal findings to women, as such information is likely to have significant emotional impact. Registered office: Nicholas House, 3 Laurence Pountney Hill, London, EC4R 0BB. We use some essential cookies to make this website work. We talked all night and thanked God for crap television.
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